My name is Lisa and we are the Woods Family. With the help of my family, I recently combined a fun hobby of mine with a cause that is near and dear to my heart. Finding a cure for Spinal Muscular Atrophy.
We are going to do our best in raising funds to donate to Families of SMA for the research of a cure. Big or small, all donations make a difference and we are glad to be helping.
Oh, did I mention that I battle with SMA myself?
I have the diagnosis of Type III, often referred to as Kugelberg-Welander or Juvenile Spinal Muscular Atrophy.
About SMA Type III
The diagnosis of Type III, often referred to as Kugelberg-Welander or Juvenile Spinal Muscular Atrophy, is much more variable in age of onset, and children can present from around a year of age or even as late as adolescence, although diagnosis prior to age 3 years is typical. The patient with Type III can stand alone and walk, but may show difficulty with walking at some point in their clinical course. Early motor milestones are often normal. However, once they begin walking, they may fall more frequently, have difficulty in getting up from sitting on the floor or a bent over position, and may be unable to run. With Type III, a fine tremor can be seen in the outstretched fingers but tongue fasciculations are seldom seen. Feeding or swallowing difficulties in childhood are very uncommon. Type III individuals can sometimes lose the ability to walk later in childhood, adolescence, or even adulthood, often in association with growth spurts or illness.
If you would like to read my SMA story, please
Thank you for visiting and I hope you like what we have to offer.
Together, we can make a difference!